I cannot believe that this is my first blog post of the year. Where is 2015 going?!? It is almost the end of June and we have had lots and lots of adventures already. Paul had a Papworth check up back in February and again was declared stable. His fatigue remains our main daily reminder that all is not well, but we work round it as best we can. He has a nap after lunch most days now.
We have had several trips away this year already. Weekends away for Easter to the seaside and for the May bank holiday to Great Yarmouth. We had a weeks holiday in April to Center Parcs and we are not long back from a couple of nights away taking Ethan to Thomas Land! We all thoroughly enjoyed ourselves.
At the beginning of the year Paul was interviewed for the Cambridge Evening News and also featured in our more local paper along with Ethan. This has bought about a thirst to raise more awareness.
A couple of weeks ago now we had a BBC producer, presenter and cameraman spend the day with us interviewing and filming for inclusion on the BBC2 show Victoria Derbyshire. Tomorrow the programme will air (from 9.15am) and will highlight the Asbestos in Schools issue. We are so very pleased that we have been able to play a part in raising awareness on a nationwide programme. We hope we have done it justice.